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Friday, May 18, 2012

(Diabetes Blog Week) What they should know.

Today's prompt: Today let’s borrow a topic from a #dsma chat held last September. The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”. Let’s do a little advocating and post what we wish people knew about diabetes. Have more than one thing you wish people knew? Go ahead and tell us everything.

One thing that I wish people knew about diabetes is that you DON'T get used to it.

That's something I hear a lot. "Doesn't that hurt? Well, I guess you're used to it, so maybe not." It especially annoys me when a different person says the second part. It's like they think that they know how I feel, that they can tell people what it's like.

You don't get used to it. The hurt lessens a lot, and sometimes you stop thinking about it, but the pain doesn't ever really go away. Sometimes my lancet is dull and on too high (how I love you, easy-to-move dial - NOT) and I nearly cry when it goes in because it feels like it's going to go through my finger. Sometimes my site ends up on a nerve and every time I touch it for the next three days I wince. Sometimes my number is way out of wack and I don't know why or how to fix it. Sometimes I need to talk, need support. Sometimes I want everybody to shut up. But I try not to tell people that it does hurt, because everybody thinks I'm brave and can deal with this just fine. There are some days that I just can't.

Yes, it's gotten much better in the last two and a half years. And I'm great with it, most days. It's just that when this comment comes up I want to yell and scream and list off everything that I'm not used to about this disease. Like that I'm still not used to the fact that this is never going away.