I stumbled upon this on a fellow diabetic’s blog. I realized that I really wanted to do it. Apparently it’s for Invisible Illness Week, which I missed out on. But I figure, awareness doesn’t have to be only for a week. Why not all the time? So, here it is. Thirty things about my illness.
- The illness I live with is: Type 1 diabetes
- I was diagnosed with it in the year: 2009 (October 13th, 11 pm, if anybody cares.)
- But I had symptoms since: The summer before
- The biggest adjustment I’ve had to make is: having to think about everything I do.
- Most people assume: That I’m used to it, so it doesn’t hurt anymore.
- The hardest part about mornings is: Getting out of bed. (Not diabetes related, just related to being a teenager).
- My favourite medical TV show is: Off the Map
- A gadget I couldn’t live without is: My Little Buddy.
- The hardest part about nights is: worrying that I will go low.
- Each day I take 0 pills and 1 vitamin (C) (sometimes).
- Regarding alternative treatments I: don’t think there are any.
- If I had to choose between an invisible illness or visible I would choose: neither. But I would rather have and invisible one because then I don’t need to tell people that I have an illness. Sometimes I like it to be my business, and mine alone.
- Regarding working and career: Well, I babysit. Does that count? Sometimes I go low during a job and it’s difficult because then I have to sit down and convince the kids to not run around and get into trouble.
- People would be surprised to know: That I am thankful for diabetes.
- The hardest thing to accept about my new reality has been: that it is a reality.
- Something I never thought I could do with my illness that I did was: be a normal kid.
- The commercials about my illness: rub me the wrong way, but I don’t have an explanation for it.
- Something I really miss doing since I was diagnosed is: eating without thinking.
- It was really hard to give up: nothing. The only thing that I had to give up, and only when I was on MDI, was eating lots of sweets in one sitting. Which I shouldn’t have been doing anyway.
- A new hobby I have taken up since my diagnosis is: Knitting, although it’s not diabetes related. Yet. (I will find a pattern for an insulin pump cover!)
- If I could have one day of feeling normal again I would: Well, it depends what you mean by normal. There’s no such thing. But if I could have one day without diabetes, I would just…enjoy it.
- My illness has taught me: That there’s a silver lining in every cloud, as dark and gloomy as it may be.
- Want to know a secret? One thing that people say that gets under my skin is: “Well, you’re used to it, so I guess it’s not that bad.”
- But I love it when people: Totally understand me. (Camp buddies!)
- My favourite motto, scripture, quote that gets me through tough times is: “You’ll be okay.” It’s from a song…I think.
- When someone is diagnosed I’d like to tell them: That they are NOT alone. And that really, it will get better. No, I didn’t believe it either.
- Something that has surprised me about living with an illness is: The network of support that comes with it. And that it really isn’t all bad.
- The nicest thing someone did for me when I wasn’t feeling well was: Left me alone for the most part.
- I’m involved with Invisible Illness Week because: I’m not…well, I guess I am now. So, I’m involved because the invisible needs to lose the ‘in’.
- The fact that you read this list makes me feel: Special. Like in that you care enough to read this blog.
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